Canadian Society for Mucopolysaccharide and Related Diseases Inc. (Canadian MPS Society)
P.O. Box 30034, RPO Parkgate
North Vancouver, BC V7H 2Y8
Toll-free: 800-667-1846 Telephone: 604-924-5130 Fax: 604-924-5131 E-mail: firstname.lastname@example.org Website: http://www.mpssociety.ca
Hide and Seek Foundation for Lysosomal Storage Disease Research
4123 Lankershim Boulevard
6475 East Pacific Coast Highway
Telephone: 877-621-1122 Fax: 866-215-8850 E-mail: email@example.com Website: http://www.hideandseek.org
DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.