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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Nephrogenic Systemic Fibrosis


Other Names for this Disease
  • Nephrogenic Fibrosing Dermopathy
  • NFD
  • NSF
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Research


Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Nephrogenic Systemic Fibrosis. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The International Center for NFD/NSF Research (ICNFDR) has created The NSF Registry, a project that collects and organizes information about patients with NSF from around the world.  The goal of the project is to identify the possible cause of the skin condition.  Click on the ICNFDR link to learn more.  
  • ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.

General Clinical Trials & Research

  • NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.