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Diseases

Genetic and Rare Diseases Information Center (GARD)

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Severe combined immunodeficiency with sensitivity to ionizing radiation


Other Names for this Disease

  • RS-SCID
  • SCID, autosomal recessive, T cell-negative, B cell-negative, NK cell-positive, with sensitivity to ionizing radiation
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Immune Deficiencies Foundation Australia
    PO Box 969
    Penrith NSW 2751
    Australia
    Telephone: 800-100-198
    E-mail: info@idfa.org.au
    Website: http://www.idfa.org.au/

  • International Patient Organization for Patients with Primary Immunodeficiencies
    Firside Main Road
    Downderry
    Cornwall PL11 3LE
    United Kingdom
    Telephone: 44-01503-250-668
    E-mail: Info@ipopi.org
    Website: http://www.ipopi.org/

  • National Primary Immunodeficiency Resource Center
    747 Third Avenue
    New York, NY 10017
    Toll-free: 800-533-3844
    Telephone: 212-819-0200
    Fax: 212-764-4180
    E-mail: info@jmfworld.org
    Website: http://www.info4pi.org

  • United States Immunodeficiency Network (USIDNET)
    Towson, MD 21204-4803
    Toll-free: 800-296-4433
    Fax: 410-321-9165
    E-mail: info@usidnet.org
    Website: http://www.usidnet.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • RS-SCID
  • SCID, autosomal recessive, T cell-negative, B cell-negative, NK cell-positive, with sensitivity to ionizing radiation
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.