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International Meeting on Fibrous Dysplasia of Bone/McCune-Albright Syndrome: Best Clinical Practice and Future Research

Sunday, October 03, 2010 - Tuesday, October 05, 2010
NIH, Natcher Conference Center, Bethesda, Maryland

The clinical scientists presented the results of their investigations and experience in the care of patients with fibrous dysplasia (FD) to the entire group for discussion and comment. At the end of the conference they came together in subgroups to define what is commonly held to be the best clinical practice. The scientists likewise presented their data for discussion and comment and came together to generate a roadmap for the focus of current and future research. It was also a goal to create greater collaboration between and among the clinical and basic scientists and the patient advocacy groups. One goal of the latter interaction was to promote the creation of a patient registry and tissue bank that will allow for the collection of standardized data on an international basis and make invaluable clinical material available to basic scientists.

Contact: Michael T. Collins, MD, mc247k@nih.gov

Co-funding Institute(s):
National Institute of Dental and Craniofacial Research
Office of Rare Diseases Research