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The Alport Syndrome Symposium for Physicians, Researchers, and Families

Saturday, August 28, 2010
New York

The goals of this symposium were to (1) bring together an international group of Alport syndrome researchers with affected patients and families; (2) provide clinician scientists, basic researchers, pediatric nephrologists, and families with the most recent information on the genetics, clinical features, pathogenesis, diagnosis, and treatment of Alport syndrome; (3) attract junior investigators and trainees to Alport syndrome research; (4) build collaborations among patients and families, clinicians, and researchers that will promote effective recruitment for clinical trials; and (5) educate and empower patients and families through interaction with many of the foremost clinician scientists and basic investigators in the field. The symposium aimed to generate enthusiasm and support for clinical trials of Alport syndrome therapies as well as effective recruitment strategies.

Contact: Marva Moxey-Mims, M.D., (301) 594-7717

Co-funding Institute(s):
National Institute of Diabetes and Digestive and Kidney Diseases
Office of Rare Diseases Research