The Spectrum of Caregiving and Palliative Care in Rare Diseases
NIH Natcher Conference Center, Bethesda, MD
The findings and recommendations resulting from the Workshop will provide guidance to the extramural community as well as to NINR and other Institutes, Offices (e.g., ORDR), and agencies in developing strategies for advancing the science of palliative care and caregiving in rare disease and research programs. It is anticipated that a funding opportunity announcement will result from the Workshop.
National Institute of Nursing Research
Office of Rare Diseases Research
From the National Center for Advancing Translational Sciences
From the National Institutes of Health