Locate healthcare providers and researchers who have knowledge of your condition.
Navigate the process of trying to obtain a diagnosis.
For more information about the Global Rare Diseases (Patient) Registry and Data Repository (GRDR), please contact:
Yaffa Rubinstein, Ph.D.
Director, Patient Resources for Clinical and Translational Research
Office of Rare Diseases Research
National Center for Advancing Translational Sciences (NCATS)
National Institutes of Health
6701 Democracy Boulevard
Suite 1001, MSC 4874
Bethesda, MD 20892
Telephone: (301) 402-4338
Fax: (301) 480-9655