DEPARTMENT OF HEALTH & HUMAN SERVICES
Public Health Service
National Institutes of Health
Bethesda, Maryland 20892
July 7, 2005
The Honorable Edward M. Kennedy
Ranking Member, Committee on Health,
Education, Labor and Pensions
House of Representatives
Washington, DC 20515
Dear Senator Kennedy:
I am pleased to submit to you the National Institutes of Health (NIH) Biennial and Annual Report and Plan on Rare Diseases Research Activities: FY 2004. This report also meets the requirement for our biennial and annual report to Congress found in section 404F of the Public Health Service Act, Public Law 107-280, the Rare Diseases Act of 2002.
This report presents the contributions and research advances of the NIH Institutes and Centers research programs and the Office of Rare Diseases (ORD). The basic, clinical, and research training programs contribute to the development and dissemination of information on the prevention, etiology, diagnosis, and treatment of rare diseases. Many advances presented in the report are the results of years of basic research sponsored by the NIH. Patients with rare diseases and their families continue to benefit from the treatment applications realized from the diverse nature of and emphasis placed on both basic and translational research by NIH.
Should you or your staff have any questions regarding the report please feel free to contact Dr. Stephen Groft, Director of ORD, at 301-402-4336.
Elias A. Zerhouni, M.D.