Life expectancy is relatively normal for people with Cornelia de Lange syndrome and most affected children live well into adulthood. For example, one article mentioned a woman with Cornelia de Lange syndrome who lived to age 61 and an affected man who lived to age 54. However, certain features of this condition, particularly severe malformations of the heart or throat, may decrease life expectancy in some affected people.
Last updated: 7/29/2015
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Jackson L, Kline AD, Barr MA, Koch S. de Lange syndrome: a clinical review of 310 individuals. American Journal of Medical Genetics. 1993; 47:940-946. http://www.ncbi.nlm.nih.gov/pubmed/8291537. Accessed 1/15/2015.