Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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I have aquagenic pruritus. I recently changed my diet to a diet very low in sugar and high in salt. Within the first week I noticed an extreme improvement, and now after 4 weeks I have actually forgotten that I had aquagenic pruritis. Is anything known regarding this diet and aquagenic pruritis? See answer
My 5-year-old daughter has just been told she has aquagenic pruritus. It is a very stressful time for us. Our main problem is getting her dressed in the morning, the change of clothes. We were told this is very rare for a child my daughter's age. Normally it is found in adults and not children. What can you tell us about this condition? See answer