Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Overcoming Barriers to International Clinical Trials for Rare Cancers
Friday, December 10, 2010
Location: Bethesda, Maryland
Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.
Contact: Jack Welch, M.D., Ph.D., firstname.lastname@example.org@nih.gov
Co-funding Institute(s): National Cancer Institute, Office of Rare Diseases Research
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
The AJCC staging manual shows two staging formats for appendiceal tumors: one for adenocarcinoma of the appendix which is similar to adenocarcinoma staging in the rest of the gastrointestinal tract, and one for typical appendiceal carcinoid tumors. In a tumor like goblet cell carcinoid of the appendix, which staging system is to be used? See answer
I had my appendix removed approximately 7 weeks ago and found out afterwards there was a 1cm goblet cell carcinoid on the tip of the appendix. I am getting conflicting directions from doctors whether to have regular 3 month check ups or remove the right hemicolon. I'm confused what route to take next. See answer
My wife has been diagnosed with goblet cell carcinoma of the appendix. I am very concerned and can't find much information. Can you help? How can I find a specialist? See answer