Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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The research I find says no one knows what causes this rare disease. If this is the case, then how does one know that the eyes being exposed to environmental chemicals cannot cause this rare disease? See answer
My girlfriend has this disease. Can you please provide some basic information on this disease including treatment and possible outcomes? How long does it take for eye sight to deteriorate? See answer
What causes idiopathic juxtafoveal retinal telangiectasia? See answer