Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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My son has headaches, increased cerebrospinal fluid pressure, visual issues, ringing in both ears, insomnia and jaw pain. An MRI showed an incidental pineal cyst. What is the appropriate follow-up? See answer
I recently had a MRI of my brain and the results came back normal with an incidental finding of a pineal cyst. Is this something I should worry about? See answer
My son was just diagnosed with having a pineal cyst which is multiseptate. I am concerned and want to know more. What causes it? What are the symptoms? Is it recommended to have it removed? See answer
I had an MRI three years ago and an incidental finding of a pineal cyst; it measured 14mm at that time. I had a second MRI recently and the cyst has not gotten bigger. I understand that 14 mm is pretty big by pineal cyst standards. Should I have another MRI or should I be concerned based on its size? See answer
My wife was diagnosed with a cyst on her pineal gland. We have been researching information and have seen both good and bad things. She's had two MRIs and bloodwork done, and the doctors believe it's benign. What else can we do? See answer
An MRI identified an unusual, one centimeter nodule on the edge of a pineal cyst. How could this nodule be differentiated as a complicated pineal cyst or a pineocytoma? What are the best treatment options for either a complicated pineal cyst or a pineocytoma if the patient is experiencing symptoms? See answer