In some cases, the cause of bone marrow necrosis cannot be determined.
Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Ethical and Regulatory Aspects of the Procurement of Cell Products from Healthy Minors on Research Protocols: Protecting Minors in the Context of Potentially Life-Saving Clinical Research Friday, March 13, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
The primary goal is to establish a set of guidelines to use when evaluating the role of a minor hematopoietic stem cell donor on a research protocol, as it relates to the Federal regulations governing pediatric research. Secondary goals include identifying areas of controversy in the context of minor donors and federal regulations and design actions plans to potentially implement change in the federal regulations.
Contact: Terry J. Fry, M.D.,(301) 402-0215,email@example.com
Co-funding Institute(s): National Cancer Institute, Office of Rare Diseases Research
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