Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
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My uncle has had pure red cell aplasia for almost three years. About two years ago the hospital in my home town would not treat him anymore because they thought it was impossible to cure him. My mother transferred him to a bigger hospital in another city. Now he is taking medications for a very long time but his hemoglobin never goes up. The hospital said there is nothing to do if those medications don't work. My whole family is hopeless again now. Could you please help my uncle? He is only forty years old. See answer