The following information may help to address your question:
We have identified sources of information on Carney complex that can help you learn more about this condition. You may wish to share some of these resources with health care providers who are unfamiliar with Carney complex.
For a comprehensive review of Carney complex you can visit GeneReviews. This review also provides information on the recommended clinical tests and treatment for Carney complex. GeneReviews provides current, expert-authored, peer-reviewed, full-text articles describing the application of genetic testing to the diagnosis, management, and genetic counseling of patients with specific inherited conditions.
Two articles from the online eMedicine Journal provide information on Carney complex at the following links. You may need to register to view the articles, but registration is free. Articles on eMedicine are written for healthcare professionals and may be difficult to understand for those without medical training. We suggest that you share this resource with a health care provider if you have questions.
Orphanet is a database dedicated to information on rare diseases and orphan drugs. Access to this database is free of charge. You can access the page on Carney complex by visiting the following link.
More information on Carney complex is also available from the Web site for the New Zealand Dermatological Society.
Patient Recruitment and Public Liaison Office
NIH Clinical Center
Web site: http://clinicalcenter.nih.gov/