Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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I was diagnosed with COP 2 years ago, just before I retired. I've had an open lung biopsy, been hospitalized numerous times and treated with high doses of prednisone. I've had months at a time when I could function very well without oxygen. But I have recurrences. For the last two months I have been coughing a lot and have gasped for air with any exertion and I am back on back on 4 liters of oxygen 24/7. Is there any way to treat recurrent COP? I am afraid I will never get rid of it. See answer
My mother has idiopathic BOOP / Mycobacterium avium-intracellulare (MAI). She's 81 years old and now weighs 89 lbs. This disease is eating her up. Is this a genetic disease? Could I be at risk? See answer
Is this condition contagious? See answer