Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
17th Adrenal Cortex Conference
Tuesday, March 29, 2016 -
Thursday, March 31, 2016
Location: Boston, MA
Description: Since 1984 the Conference on the Adrenal Cortex has provided an exciting combination of science and resources for basic and clinical scientists. The 2016 conference will continue the tradition by including renowned speakers who will cover the latest research on adrenal development, hormone signaling, steroidogenesis, adrenal insufficiency, primary aldosteronism, Cushing’s syndrome and adrenal cancer. As in previous meetings, the Keith L. Parker Memorial Lecture will be awarded to an international leader for their contributions to adrenal research.
Contact: Dr. Maria L. Dufau(301) firstname.lastname@example.org
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know.