Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
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My son has been diagnosed with developmental dysphasia. I want to know more, the prognosis of his speech, the link between this and epilepsy which he also has, anything someone might be able to tell me other than his team of docs. Thank you! Oh, and the prevalence of this disorder! See answer