Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
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I have the version of AMPPE that does not go away in a few months. I've had it since 2010. My vision seems to be getting darker, even in a brightly lit room -- the longer I read, the darker it gets. I have deposits on the macula of both eyes. Has anyone ever noted increasing memory problems after the AMPPE starts? I'm wondering if there are deposits in the brain similar to the deposits on the eyes, but with the deposits in the brain causing memory loss. Has anyone tried removing the deposits on the macula, perhaps with a laser? Do the deposits damage the macula? See answer
My husband has been diagnosed with acute posterior multifocal placoid pigment epitheliopathy. Is the vision loss associated with this condition permanent? See answer