My granddaughter has hemimegalencephaly and is suffering with seizures that thus far are not being controlled with any medications. We have been told the next step is to have brain surgery. Can you provide me with information about this?
Because the seizures associated with hemimegalencephaly are difficult to control with anti-epileptic medications, most patients undergo surgery to separate one hemisphere of the brain from the other (hemispherectomy). There are several surgical options to consider. One is functional hemispherectomy which involves severing the nerves and tissue connecting one side of the brain to the other, leaving the brain within the skull. Another is a complete or anatomic hemispherectomy in which the affected side of the brain is surgically removed. These surgeries are usually performed by a neurosurgeon with experience treating epilepsy syndromes. Over time, the remaining side of the brain may take over the functions lost.
Last updated: 11/27/2015
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