Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Workshop on Universal Reporting Parameters for the Speech of Individuals with Cleft Palate Friday, April 30, 2004 -
Sunday, May 2, 2004
Description: The goals of this conference were to adopt a universal reporting system including evaluation procedures, parameters of the system, guidelines in description of speech, speech sampling, use of scales and scoring, and data management and mapping and to identify a research agenda.
Contact: Dr. Lana Shekim(301) 496-5061
Co-funding Institute(s): National Institute on Deafness and Other Communication Disorders
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