Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Workshop on Universal Reporting Parameters for the Speech of Individuals with Cleft Palate Friday, April 30, 2004 -
Sunday, May 2, 2004
Description: The goals of this conference were to adopt a universal reporting system including evaluation procedures, parameters of the system, guidelines in description of speech, speech sampling, use of scales and scoring, and data management and mapping and to identify a research agenda.
Contact: Dr. Lana Shekim(301) 496-5061
Co-funding Institute(s): National Institute on Deafness and Other Communication Disorders
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