This table lists symptoms that people with this disease may have. For most diseases, symptoms will vary from person to person. People with the same disease may not have all the symptoms listed. This information comes from a database called the Human Phenotype Ontology (HPO) . The HPO collects information on symptoms that have been described in medical resources. The HPO is updated regularly. Use the HPO ID to access more in-depth information about a symptom.
|Medical Terms||Other Names||
|80%-99% of people have these symptoms|
Bacterial infection of skin
Skin infection[ more ]
Skin itching[ more ]
|30%-79% of people have these symptoms|
|Abnormal blistering of the skin||
Blisters[ more ]
Water retention[ more ]
High blood eosinophil count
|5%-29% of people have these symptoms|
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Got a Great Research Idea? ‘All of Us’ Wants to Hear It!
January 18, 2018
New NCATS Rare Diseases Research Video
December 27, 2017
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
My child has been having outbreaks from Wells since infancy, but nobody knew what was going on. It took a number of years before he was finally diagnosed with Wells syndrome. For the last two years he has taken a low dose steroid every other day. When his outbreaks are really bad his doctors just give him more steroids. The steroids help it not get out of hand like it was before he started the medicine, however I worry about the long term effects. We've tried Griseofulvin in the past, but that did not help at all. Are there other treatment options? See answer
I have been diagnosed with Wells syndrome. How is this condition treated? See answer