Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
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The following diseases are related to Chronic progressive external ophthalmoplegia. If you have a question about any of these diseases, you can contact GARD.
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Is chronic progressive external ophthalmoplegia fatal? If so, what is the life expectancy? See answer
I would like to learn more about chronic progressive external opthalmoplegia, particularly how it can be treated. Also does the rate of progression vary from person to person? What is the typical prognosis (long term outlook) for people with this condition? Can chronic progressive external opthalmoplegia affect facial muscles as well? See answer