Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Got a Great Research Idea? ‘All of Us’ Wants to Hear It!
January 18, 2018
New NCATS Rare Diseases Research Video
December 27, 2017
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
I'm 21 weeks pregnant. I had an anomaly scan last week and there is a problem. The heart and corresponding organs are inverse in direction. The right side organs are on the left and the left side organs are on the right. On the exam there was no problem in growth and everything is perfect at this stage. Is it safe to give birth? Will any problems arise after birth? See answer
My son was born with abdominal situs inversus. There is not a lot of information on this, except for the little information I get from doctors. I know it is rare. Both mother and father have no known medical conditions. Is there any information I can look at? See answer
My husband has situs inversus. Is the brain turned around or otherwise affected in individuals with this condition? See answer
Can you provide me with information about situs inversus? See answer