Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
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My daughter has all symptoms of UHS. Do most children grow out of it? Is there any product that can help? And what age would she typically grow out of it? Lastly, should we get a test or visit the doctor to get a diagnosis? See answer
My 3.5-year-old granddaughter has always had white, spun, coarse, dry, uneven hair. I would like to know more about a condition called uncombable hair syndrome. I understand that the hair follicles have an odd shape. Could you provide me with as much information as possible about this syndrome? See answer