Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
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Does this disease affect your life span? Will it affect how you live your daily life? See answer
My daughter is pregnant and has adenosine monophosphate deaminase deficiency and her symptoms can be very severe. How would that affect her giving birth? See answer
I was diagnosed with adenosine monophosphate deaminase deficiency 6 years ago. How might this condition be treated? See answer