This table lists symptoms that people with this disease may have. For most diseases, symptoms will vary from person to person. People with the same disease may not have all the symptoms listed. This information comes from a database called the Human Phenotype Ontology (HPO) . The HPO collects information on symptoms that have been described in medical resources. The HPO is updated regularly. Use the HPO ID to access more in-depth information about a symptom.
|Medical Terms||Other Names||
|80%-99% of people have these symptoms|
Low blood potassium levels
Cancer of the pancreas
|30%-79% of people have these symptoms|
|Episodic abdominal pain||0002574|
|Generalized muscle weakness||0003324|
High blood calcium levels
Increased calcium in blood
|Nausea and vomiting||0002017|
|5%-29% of people have these symptoms|
|Abnormal gastrointestinal motility||0030895|
Intermittent yellow skin
Intermittent yellowing of skin
|1%-4% of people have these symptoms|
|Benign gastrointestinal tract tumors||
Non-cancerous GI tumors
|Follicular thyroid carcinoma||0006731|
|Growth hormone excess||0000845|
|Increased circulating cortisol level||0003118|
|Increased circulating gonadotropin level||
Elevated serum gonadotropins
|Neoplasm of the liver||
|Respiratory insufficiency due to muscle weakness||0002747|
Making a diagnosis for a genetic or rare disease can often be challenging. Healthcare professionals typically look at a person’s medical history, symptoms, physical exam, and laboratory test results in order to make a diagnosis. The following resources provide information relating to diagnosis and testing for this condition. If you have questions about getting a diagnosis, you should contact a healthcare professional.
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Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Overcoming Barriers to International Clinical Trials for Rare Cancers
Friday, December 10, 2010
Location: Bethesda, Maryland
Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.
Contact: Jack Welch, M.D., Ph.D., email@example.com@nih.gov
Co-funding Institute(s): National Cancer Institute, Office of Rare Diseases Research
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My husband was diagnosed in 1998 with VIPoma. He uses octreotide to help control the symptoms. Is there any other known treatment (other than surgery) for this rare cancer? See answer