|Signs and Symptoms||Approximate number of patients (when available)|
|Abnormal diaphysis morphology||90%|
|Abnormality of pelvic girdle bone morphology||90%|
|Abnormality of the metaphyses||90%|
|Rough bone trabeculation||90%|
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.