The following information may help to address your question:
ClinicalTrials.gov provides a helpful guide for information about participating in a clinical trial. Resources for travel and lodging assistance are listed on the National Center for Advancing Translational Sciences Office of Rare Diseases Research (NCATS-ORDR) website, part of the National Institutes of Health (NIH).
Additional information and supportive resources for PFAPA can be obtained from the following organization.
NOMID Alliance, Inc.
P.O. Box 590354
San Francisco CA 94118
Web site: http://www.nomidalliance.org/