Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Got a Great Research Idea? ‘All of Us’ Wants to Hear It!
January 18, 2018
New NCATS Rare Diseases Research Video
December 27, 2017
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
17th Adrenal Cortex Conference
Tuesday, March 29, 2016 -
Thursday, March 31, 2016
Location: Boston, MA
Description: Since 1984 the Conference on the Adrenal Cortex has provided an exciting combination of science and resources for basic and clinical scientists. The 2016 conference will continue the tradition by including renowned speakers who will cover the latest research on adrenal development, hormone signaling, steroidogenesis, adrenal insufficiency, primary aldosteronism, Cushing’s syndrome and adrenal cancer. As in previous meetings, the Keith L. Parker Memorial Lecture will be awarded to an international leader for their contributions to adrenal research.
Contact: Dr. Maria L. Dufau(301) email@example.com
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