Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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I have just had surgery for this condition - I am 53 years old and have had hip pain in my right hip for 31 years. Finally it has been diagnosed and (hopefully) fixed. I have also had type 1 diabetes since I was 28. Are there any ideas about the cause of synovial chondromatosis? Do you think I will have a full recovery? I have some arthritis in the joint - will this resolve? See answer