The Human Phenotype Ontology (HPO) provides the following list of features that have been reported in people with this condition. Much of the information in the HPO comes from Orphanet, a European rare disease database. If available, the list includes a rough estimate of how common a feature is (its frequency). Frequencies are based on a specific study and may not be representative of all studies. You can use the MedlinePlus Medical Dictionary for definitions of the terms below.
In some people with AU, hair regrowth occurs without treatment, sometimes after many years.
There are measures that can be taken to minimize the effects of excessive sun exposure or discomfort. These may include:
Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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What is the cause of my condition? And how many people get this? Can it be causing other side effects? See answer
Is this form of alopecia be reversible? Can the hair just grow back one day? See answer
My fiance has alopecia universalis. He has no family history of this condition. Recently, I read that the disease is hereditary. This worries me. Please help me understand our future children's chance of developing alopecia universalis. See answer
Is there a cure for alopecia universalis? See answer
I was born with alopecia universalis. I have recently had regrowth of thin sparse hairs. What can I expect from this condition? Will my hair ever grow back fully and can the condition be cured? See answer