Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
How does cryoglobulinemia affect the lungs? What are the symptoms? How is the lung involvement diagnosed? How does it affect the skin. Is vasculitis painful? See answer
What is the difference between cryoglobulinemia and cold agglutinin disease? See answer
What is cryoglobulinemia? How is it diagnosed? How might it be treated? What are the expected outcomes for individuals with cryoglobulinemia? How common is it? See answer
Has any correlation been found between cryoglobulinemia and protein S deficiency? See answer