Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
National DNA Day Reddit "Ask Me Anything" (AMA) Series
April 11, 2018
The following diseases are related to Ehlers-Danlos syndromes. If you have a question about any of these diseases, you can contact GARD.
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
I have kyphoscoliosis type and severe Asperger, severe anxiety disorder, and severe major depression. Can you provide information about Ehlers-Danlos syndrome being related to severe mental disorders? See answer
I have a friend who has TRAPS, as well as Ehlers-Danlos syndrome. Can TRAPS cause very low immunity throughout a person's life? Can Ehlers-Danlos syndrome be associated with immune system dysfunction? Can having both conditions cause low immunity? See answer
Are there different types of Ehlers-Danlos syndrome? See answer
Can you have children if you have Ehlers-Danlos syndrome? See answer
What causes Ehlers-Danlos syndrome and what are the symptoms? See answer