The resources below provide information about treatment options for this condition. If you have questions about which treatment is right for you, talk to your healthcare professional.
Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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My dad and his sister passed away from this and in the last few months his other sister was diagnosed. What are the chances of me and my brother getting it? I've already had a number of things change with my health in the last two years, such as hypothyroidism and diabetes. Are there any things I should look out for? See answer
My dad has been diagnosed with amyloidosis. How can we know if it is hereditary amyloidosis or not? See answer