Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
I have juvenile myoclonic epilepsy. Does the medication that I take help to cure the condition or just treat the symptoms? Will I need to take medication for the rest of my life? If I have children, will they be affected? Is it safe for me to exercise daily? See answer