Symptoms vary depending on the area affected. Patients experience different degrees of discomfort. When lichen sclerosus occurs on parts of the body other than the genital area, most often there are no symptoms, other than itching. If the disease is severe, bleeding, tearing, and blistering caused by rubbing or bumping the skin can cause pain.
The Human Phenotype Ontology (HPO) provides the following list of features that have been reported in people with this condition. Much of the information in the HPO comes from Orphanet, a European rare disease database. If available, the list includes a rough estimate of how common a feature is (its frequency). Frequencies are based on a specific study and may not be representative of all studies. You can use the MedlinePlus Medical Dictionary for definitions of the terms below.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
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I have had 7 surgeries, 5 in the last 15 months where my doctor went through my vagina to do the surgery. I was diagnosed with lichen sclerosus about 5 months ago. Could all the trauma to my vaginal area be the cause of the lichen sclerosus? See answer
How does diet affect lichen sclerosus? Are there certain foods that should be avoided? See answer
My doctor told me I have lichen sclerosis. What is this condition? See answer