My daughter who is 3 months old has a large cafe-au-lait lesion that has darkened since birth. It is very classical for this syndome (midline, coast of Maine, covers entire right buttocks and back of leg). We were referred to a pediatric dermatologist and she is being worked up for McCune Albright. The next step is a full series of x-rays. They are not sure taking them this early would show any bony changes. Do you have any recommendations of steps we can take now to determine if she does indeed have this syndrome and to what degree she is affected?