There is no specific treatment for this disease. Supportive care from the following specialists may be helpful for managing the symptoms:
You can learn more about ongoing research efforts to better understand the natural history of this condition and identify treatment options in the Research section of our web page.
We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please
GARD Information Specialist
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Genetic and Rare Diseases Information Center (GARD) - PO Box 8126, Gaithersburg, MD 20898-8126 - Toll-free: 1-888-205-2311