Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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What is the cause of pachygyria? See answer
I have been diagnosed with pachygyria (macrogyria). I don't have mental retardation, in fact I have a high IQ. I have severe migraines and recently started having seizures. Could pachygyria be causing my problems? Are there any other problems that could be caused by pachygyria? Is there a treatment for it? Also, what is pseudobulbar palsy? See answer
My child has been diagnosed with pachygyria. What can I expect for my child's future? See answer