Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
Autoinflammation 2013: The Seventh International Congress of FMF and Autoinflammatory Diseases Wednesday, May 22, 2013 -
Sunday, May 26, 2013
Location: Lausanne, Switzerland
Description: The goals of this meeting include the exchange of clinical and scientific information regarding the autoinflammatory diseases. This is likely to result in improvements in the diagnosis and treatment of these diseases. Past Congresses have resulted in new scientific collaborations, development of registries for patients with specific autoinflammatory disorders, and the initiation of multicenter clinical trials.
Contact: Daniel Kastner, M.D., Ph.D., email@example.com
Co-funding Institute(s): National Human Genome Research Institute, Office of Rare Diseases Research
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I have three children who have been treated for PANDAS and PANS successfully, on several occasions. I am a nursing student and for my research paper, I chose to write about PANDAS because I am passionate about the subject, having faced tremendous difficulty in getting help for my children. I am wondering if you know about the prevalence and incidence of PANDAS, as I am not able to find much information about how many children are affected. I appreciate any help you can give me. See answer