I am a 46 year old female who was born with Polands Syndrome. I was missing the upper ribs and the chest wall on my right side. As a result I am now facing multiple spinal problems and am looking for the correct treatment by the correct specialists. How do I go about finding spine specialists who have worked with this condition?
Plastic surgeons are the types of doctor most commonly treating Poland syndrome, due to the need for chest reconstruction. Therefore it may be worthwhile to search the database of the American Society of Plastic Surgeons.
Additionally, although they do not provide treatment for Poland syndrome, genetics professionals may be able to find appropriate referrals. The following online resources can help you find a genetics professional in your community:
GeneTests has a searchable directory of US and international genetics and prenatal diagnosis clinics.
The American Society of Human Genetics maintains a database of its members, which includes individuals who live outside of the United States. Visit the link to obtain a list of the geneticists in your country, some of whom may be researchers that do not provide medical care.
Last updated: 2/24/2016
We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please