The long-term outlook (prognosis) for people with RTS is generally good, but it may vary due to the range and severity of the health problems that may be present. Most patients have developmental delay and intellectual disability but most of patients older than 6 years of age are able to learn to read. Life expectancy generally does not seem to be affected, except in children with complex cardiac (heart) defects. Cancers and respiratory infections are the most common causes of death. Survival rates in general are good and there are many reports of adults with RTS.
Last updated: 5/29/2017
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