I may be a carrier for Sandhoff disease. I am pregnant, non-Jewish and my hexosaminidase A is slightly elevated. The test was not definitive. I am negative for Tay Sachs. My husband is NOT a carrier for Sandhoff and due to this I have been discouraged from getting further testing. Both of my parents asked for Sandhoff testing but were given Tay Sachs tests and both were negative. I am concerned for my extended family. They should know if we have a genetic disorder but I do not want to alarm anyone needlessly. Is there any advice that can be given? All of your help is greatly appreciated.