This table lists symptoms that people with this disease may have. For most diseases, symptoms will vary from person to person. People with the same disease may not have all the symptoms listed. This information comes from a database called the Human Phenotype Ontology (HPO) . The HPO collects information on symptoms that have been described in medical resources. The HPO is updated regularly. Use the HPO ID to access more in-depth information about a symptom.
|Medical Terms||Other Names||
|80%-99% of people have these symptoms|
|Adrenocorticotropic hormone deficiency||0011748|
|Adrenocorticotropin deficient adrenal insufficiency||0011735|
Chronic extreme exhaustion
|Decreased circulating cortisol level||
Low blood cortisol level
|Secondary growth hormone deficiency||0008240|
|30%-79% of people have these symptoms|
|Abnormal size of pituitary gland||0012504|
Abnormal absence of menstruation
|Decreased female libido||
Decreased female sex drive
|Decreased serum estradiol||0008214|
Low blood sugar
Difficulty getting a full erection
Difficulty getting an erection
Erectile dysfunction[ more ]
|Progressive visual field defects||0007987|
|Sparse axillary hair||
Little underarm hair
|Sparse pubic hair||
Decreased sexual hair
|5%-29% of people have these symptoms|
Low blood sodium levels
Having too much body fat
Missed heart beat
Skipped heart beat[ more ]
|Sensorineural hearing impairment||0000407|
|1%-4% of people have these symptoms|
|Central diabetes insipidus||0000863|
If you need medical advice, you can look for doctors or other healthcare professionals who have experience with this disease. You may find these specialists through advocacy organizations, clinical trials, or articles published in medical journals. You may also want to contact a university or tertiary medical center in your area, because these centers tend to see more complex cases and have the latest technology and treatments.
If you can’t find a specialist in your local area, try contacting national or international specialists. They may be able to refer you to someone they know through conferences or research efforts. Some specialists may be willing to consult with you or your local doctors over the phone or by email if you can't travel to them for care.
You can find more tips in our guide, How to Find a Disease Specialist. We also encourage you to explore the rest of this page to find resources that can help you find specialists.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
I was diagnosed with Sheehan syndrome after complications with giving birth 8yrs ago. I have been having trouble getting pregnant and wanted to know if Sheehan syndrome creates difficulties with having a pregnancy. See answer
I am curious to know if there is a genetic link to Sheehan syndrome. My maternal grandmother hemorrhaged after her 5th child and ended up losing all of the hair on her body, less the hair on her head. My maternal aunt also hemorrhaged after her 4th child and she too lost all body hair less the hair on her head. Neither were diagnosed with Sheehan syndrome at that time. See answer
I am interested in learning more about Sheehan syndrome. What information can you provide? See answer