In some cases, spasmodic dysphonia may run in families and is thought to be inherited. Research has identified a possible gene on chromosome 9 (9q32-34) that may contribute to the spasmodic dysphonia that is common to certain families. In some individuals the voice symptoms begin following an upper respiratory infection, injury to the larynx, a long period of voice use, or stress.
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Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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Have any cases of spasmodic dysphonia been documented as having partially reversed spontaneously (i.e., non-medically and non-surgically)? I have spasmodic dysphonia and have experienced a dramatic and spontaneous improvement of my symptoms. Is there a medical explanation for this? See answer
My mother has spasmodic dysphonia and I believe that I may have it too. How is this condition diagnosed? Is genetic testing available for this condition? See answer