|Signs and Symptoms||Approximate number of patients (when available)|
|Attention deficit hyperactivity disorder||50%|
|Abnormality of the retinal vasculature||7.5%|
|Cerebral cortical atrophy||7.5%|
|Feeding difficulties in infancy||7.5%|
|Neurological speech impairment||7.5%|
Life expectancy varies for each individual affected by Sturge-Weber syndrome. Most cases are fairly mild and not life-threatening. In these cases, life expectancy is thought to be normal. The patient's quality of life depends on how well the symptoms (such as seizures) can be prevented or treated.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
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I have a son who is 18 months old. He has Sturge-Weber and we are wondering what the percentage is that his birthmark will protrude from his face. What are the pros and cons of laser surgery? If we were to get the surgery, when would be the best time to get it done? See answer
What is the life expectancy of an adult with Sturge-Weber syndrome? See answer
How does Sturge-Weber syndrome affect adults? I'm a 43-year-old person who has this disorder and had my birthmark removed at age 4. See answer