Turner syndrome

Your health care provider can help you determine whether your hormone levels are within the normal range. About 2-5% of individuals with Turner syndrome have spontaneous periods and have the potential to achieve pregnancy without medical intervention.^[1] However, many affected women have absent or decreased ovarian function and need hormone therapy to achieve their period.^[1]  

Studies suggest that dating and initiation of sexual activities may be somewhat delayed or infrequent for some women with Turner syndrome. This may be due to a genetic or hormonal influence, or may be a result of self-esteem issues experienced by many affected women.^[1]

A 2008 study by Sheaffer AT et al examined factors that might influence sexual function in women with Turner syndrome. They reported that women with Turner syndrome who were in a partner relationship (30% of those surveyed) reported relatively normal overall sexual function, but the majority of unpartnered women reported very low level sexual functioning. Estrogen use, testosterone levels, and age of puberty did not appear to influence sexual function.^[2]

To view selected full-text journal articles on this topic, click here.

The Turner Syndrome Society of the United States has a “Professional Directory” on their Web site which lists the names and contact information for professionals familiar with Turner syndrome. Click on the link above to view this directory.