This table lists symptoms that people with this disease may have. For most diseases, symptoms will vary from person to person. People with the same disease may not have all the symptoms listed. This information comes from a database called the Human Phenotype Ontology (HPO) . The HPO collects information on symptoms that have been described in medical resources. The HPO is updated regularly. Use the HPO ID to access more in-depth information about a symptom.
|Medical Terms||Other Names||
|Percent of people who have these symptoms is not available through HPO|
Water retention[ more ]
|Elevated hepatic transaminases||
High liver enzymes
|Intrauterine growth retardation||
Prenatal growth deficiency
Prenatal growth retardation[ more ]
High urine protein levels
Protein in urine[ more ]
Low platelet count
Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
Living with a genetic or rare disease can impact the daily lives of patients and families. These resources can help families navigate various aspects of living with a rare disease.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Got a Great Research Idea? ‘All of Us’ Wants to Hear It!
January 18, 2018
New NCATS Rare Diseases Research Video
December 27, 2017
Rare Disease Day at NIH on March 1, 2018
December 19, 2017
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know. Submit a new question
During my wife's first pregnancy she had HELLP syndrome, and after a Cesarean section the baby died. Her second pregnancy was normal. She is now one month pregnant. If there is a chance for HELLP syndrome to occur again, how can we prevent it? See answer
Are there any long term consequences to the liver or kidneys due to HELLP syndrome? See answer
Can the symptoms of HELLP syndrome be caused by a vitamin B12 deficiency? See answer
I had HELLP syndrome with my first son. He is now 9 years old. I have 2 other children. I'd like to known if there has been any research to show how the children born from a HELLP syndrome pregnancy develop. Physically my son is fine however he has language issues and doesn't process information well. He is very different from my other two children who I did not have HELLP syndrome with. All of my children have the same father also. I'm a mother trying to understand my child and best help him learn and grow. See answer
I had preeclampsia and HELLP syndrome with what I believe to be my first and only pregnancy. I believe my sister had eclampsia with her second pregnancy. I also believe that our mother may have had this condition but little was known at the time of my birth. Both my sister and I now have a daughter. Given our history, does this mean that they are at a higher risk for having these problems? My daughter is just learning of these things and is concerned that she will have the same complications as we did, so I told her I would look into it for her. See answer
My mother had HELLP syndrome. Is this condition genetic? Am I at high risk of getting HELLP syndrome when I get pregnant? See answer